Consistent with our mission, we are asking Congress, the Administration, and state legislatures to support medical research to find cures for IBD, and to improve patient access to care. Below are our legislative priorities. Where appropriate, we indicate federal bills and provide links where you can learn more about state-based legislation. Speak out to help improve research funding and patient care nationwide. Together, we can make a difference.
Access to Care
Medical Research
Minorities are underrepresented in most clinical trials - this creates a line of disconnect and skewed information regarding ethnic/racial responses to medication and treatments.
Participants in clinical trials should represent the patients that will use the medical products. This is often not the case--racial and ethnic minorities are underrepresented in clinical research. This is a concern because people of different ages, races, and ethnicities, may react differently to medical products. We are committed to working with companies to change this.
Profile
About
Hey there. I'm Aarion and I'm 32 years young. I was diagnosed with Crohns Disease of my terminal ilium and colon in 2014. I'm a retired CMA for 4 Gastros. I'm from NE Ohio born and raised and reside. I have had one major bowel surgery in 2016 where I lost my job because of my recovery. I have a port in my arm from bad veins and numerous hospital stays. I'm on lots of treatment with medications for endometriosis and chronicpain,
depression and anxiety and my good friend Arthritis. I'm also on a biologic. Currently fighting with social security to restore my benefits. I'm also an only child my mom and my grandmother are my besties. Its just us 4. I like to laugh and sing,dance,family,makeup,read and vlog. I love spreading awareness any and everywhere I can. I'm a Scorpio and very compassionate and complex. I'm passionate about my work. I now use my Social medial to advocate and educate on like with crohns I share my jouney and personal plights on all my platforms. This is my new purpose. I always try to help others. I am a YouTube Vlogger so follow me at crohnie queen. I am also a single mom of 1 13 yo son. I am a dog and cat mom. I hope to one day spread my story globally and travel
and see the world. If you would like to join me on my journey my social media handles are Crohniequeenab any questions please feel free to ask would love that💜💪🏾🥰