Consistent with our mission, we are asking Congress, the Administration, and state legislatures to support medical research to find cures for IBD, and to improve patient access to care. Below are our legislative priorities. Where appropriate, we indicate federal bills and provide links where you can learn more about state-based legislation. Speak out to help improve research funding and patient care nationwide. Together, we can make a difference.
Access to Care
Medical Research
Minorities are underrepresented in most clinical trials - this creates a line of disconnect and skewed information regarding ethnic/racial responses to medication and treatments.
Participants in clinical trials should represent the patients that will use the medical products. This is often not the case--racial and ethnic minorities are underrepresented in clinical research. This is a concern because people of different ages, races, and ethnicities, may react differently to medical products. We are committed to working with companies to change this.
Health Equity / Health Disparities
ADVOCATING FOR HEALTH EQUITY / ADDRESSING HEALTH DISPARITIES IN IBD AND RELATED CHRONIC ILLNESS
An important part of the Foundation’s advocacy work is making our voices heard. Building relationships with legislators at the state and federal levels is essential to achieving our legislative priorities.
Our advocates are patients, caregivers, supporters, researchers, and healthcare providers. By sharing their stories, they ensure that the voices of those affected by IBD are heard.
We need your voice.
Start making a difference today so that we can continue to improve the quality of life for IBD patients and improve access to care and research funding. Become an advocate by joining our Advocacy Network!