Consistent with our mission, we are asking Congress, the Administration, and state legislatures to support medical research to find cures for IBD, and to improve patient access to care. Below are our legislative priorities. Where appropriate, we indicate federal bills and provide links where you can learn more about state-based legislation. Speak out to help improve research funding and patient care nationwide. Together, we can make a difference.
Access to Care
Protect Minority Patients From Discrimination
As healthcare continues to be debated, it is critical that basic patient protections are maintained, including protection from implicit bias and challenges faced due to socioeconomic status, as well as the prohibition on discrimination against
pre-existing conditions. Further, more must be done to support timely access to the care that patients need.
Reform Step Therapy
Step therapy, also known as fail first, is used by health insurance companies requiring a patient to try and fail on one or more preferred medications before approving coverage of the patient's provider-prescribed treatment.
Limit Patient Out of Pocket Costs
The Patients' Access to Treatments Act, to be introduced in the U.S. House of Representatives, would make medications more affordable for patients by prohibiting higher cost-sharing for specialty medications,
Minorities are underrepresented in most clinical trials - this creates a line of disconnect and skewed information regarding ethnic/racial responses to medication and treatments.
Participants in clinical trials should represent the patients that will use the medical products. This is often not the case--racial and ethnic minorities are underrepresented in clinical research. This is a concern because people of different ages, races, and ethnicities, may react differently to medical products. We are committed to working with companies to change this.