Our Goal, Vision & Commitment
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Our Mission
Our mission is to improve the quality of life for the diversity community affected by IBD, and chronic illnesses that are connected to IBD, through programs of research, education, support and advocacy.
We are focused on achieving the following outcomes:
1.
Healthy Equity in underserved communities through on-the-ground connections
Engaging policymakers and speaking on behalf of those affected by these debilitating illnesses
2.
3.
Expanding opportunities for innovative interventions and more direct services that will enhance quality of life and accessible treatments
Representation Matters
Minorities are underrepresented in most clinical trials - this creates a line of disconnect and skewed information regarding ethnic/racial responses to medication and treatments.
IBD genetics have been evaluated in more than 1,000 studies in white and Asian—primarily East Asian—populations. Although the risk is slightly lower than that of white Americans, African-Americans are at significant risk for IBD.
American children with a chronic disease almost quadrupled (from 1.8% to 7.0%) with racial/ethnic minority youth being affected disproportionately. Increased rates of childhood chronic diseases imply that higher rates of these illnesses will occur during adulthood.
More than 133 million Americans (45% population) have one or more chronic diseases. Racial/ethnic minorities are 1.5 to 2.0 times more likely than whites to have most of the major chronic diseases
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COMING SOON
Change will not come if we wait for some other person, or if we wait for some other time. We are the ones we’ve been waiting for. We are the change that we seek.
– Barack Obama
